Pastor called it emotional undressing.
Either way I share his dislike of doing it. But I need to unburden myself of some disappointments and get back min the right frame.
Mrs. Empath and I had procured a week at an all inclusive place on an island somewhere far south and east of Florida. We intended to celebrate our 25th anniversary thus. Id cashed mileage for first class airfare and we were chomping at the bit to go.
Both her and I were attending the gym, and I was playing tennis almost daily. We were able to get into shape over the past three months, eating right, sleeping well, high energy, etc.
Then, I got a tap on the shoulder two weeks ago and heard a whispered, “Hey, Empath, you recall that you have me…. Crohn’s disease ….right? You have not forgotten that I’m here just because Ive never bugged you before, right?”
Well I actually kinda had all but forgotten. So I received a reminder too significant to ignore. Events cascaded, ended up with GI doc doing all kinds of tests and putting me on nasty steroids of two flavors plus a couple of other meds.
My Big Crohn’s Debut….Yay….and our trip was cancelled. Thankfully the booking agent convinced me to pay a couple hundred bucks for trip insurance so we get everything refunded.
Today is the day, the anniversary we are celebrating.. I took the day off. I did so mainly because there was almost no sleep last night and I am weak enough to manage a spot-on bobble head imitation. Slightly anemic, a tad under nourished, and suffering the flares of the arthritis that goes with this monster, I’m starting to get demoralized. There has not been a good day in over two weeks.
I slept all day, until 5PM. Something like 18 hours of sleep. I feel better but this isn’t a problem that rest cures. There are no cures, just good times and bad times, remissions and flares. All with the use of steroids and other bad medicines.
Gives me a chance to weigh in on my favorite topic of food. There is no identified food or dietary trigger from a flare up, not is there a diet known to calm the flare. This is not celiac disease, a condition that more than half those claiming to have it have never has a test done by a doctor, and some who say they have it have had tests come back negative but insist the Doc is wrong, they are gluten intolerant.
This problem I have can be seen clearly with cameras in the right places. It isn’t subtle and when it flares it isn’t irritating…it is all consuming. Between blood loss, mal-absorption, dehydration, skin manifestations, arthritis, so forth, it takes weeks of life away.
So if someone has a dietary idea, Im glad to hear it. Before you share that Id ask that you make sure you know what crohns disease is and how much effort has gone into studying diet. If you are aware of something that may help, do tell. I’m open minded.
Meanwhile, my friend Beav is in hospice and may not make it through July. He cannot recognize anyone and is in restraints so he harms no one.
Some friends of ours from Dallas 26 years ago, their daughter was just murdered. BF, bad choices, bad thing happened. We have pics of our 22 year old son as a baby in the plastic kid pool with that girl.
There are lots worse things than my cancelled vacation and battle with crohns. Ill thank God joyfully as He always gives me context so that I do not emotionally pole dance too much